We see our lead team specialist today, I really don't know why I get nervous about these appointments...I talk to her at least twice a week and we email back and forth even more. I guess we should be getting more details about Columbus and that may be the reason for the nerves. I'll update after the appointment...
BIG NEWS....
Yesterday I was able to feed Kyle COMFORTABLY for 6 hours straight at 45 mls an hour...that is the most we have been able to do in MONTHS. He had ZERO pain until of course we stopped the feeds to start TPN. Then we went down hill. But that's ok..that's movement in the right direction...small steps....amazing how good that can feel!
XOXOX
9 comments:
Kate,
The Big news is huge!! So happy for Kyle.
Thanks for updating.
Baby steps, right! I hope it get better everyday! :)
I have tears flowing! Yay Kyle! Steps in the right direction! I am so happy for you.
Oh my gosh that is BIG news!!!! I will keep you in my thoughts today!
That's awesome news for Kyle. Way to go :) anxious to hear about the appointment!
i am so glad to hear this...
you are always i my prayers...
best wishes..
OMG, Kate, that is huge!! He had 6 whole hours of comfortable feeds? What has changed, did some of his meds start working? That is great.
Leigh
WTG KYLE!! (and MOM!) Thats awesome!! So good to read this! YAY, I hope this means things maybe getting better for your little guy! Keeping my fingers crossed, lots of prayers as always-
Heidi & Jack.
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