Saturday, February 6, 2010


We are home, we left yesterday with a pretty solid plan on where we need to be. So far the j feeds are not going well...lots of bile, lots of leakage and he's complaining alot. I am at this point really torn we need to push forward and give this more time..but its extremly hard to watch him have to suffer for us to once again probably prove a point. On the flip side of that I keep hoping that we can get over this hump and see some positive results. We have to get him off the TPN, his liver enzymes are still climbing and we can't afford that.

I am feeling a little defeated today...I hate this for him...on top of that Jack has strep and an ear infection...thank god for Mimi and Papa...who took him to the dr for me and kept him last night...we can't afford for Kyle to be around that. With his high doses of steroids that's a major problem we can't afford right now...Jack is alot better today and is pretty happy to be spending one on one time with his grandparents...yet once again I feel like I can't be there for all of's been a rough week. Alex is struggling and now with Jack sick I wonder sometimes how we will manage all this.



Lauren said...


I'm so glad that you are home. I'm so sorry that Jack has a case of the sickies now too! I imagine it's so very difficult to not be able to have everyone under one roof.

My heart and thoughts are with you,

Karri said...

Very happy to hear you're home!
I'm sorry that things are going as smoothly as you had hoped. I'm also sorry that Jack is sick. And I'm sorry that you're feeling discouraged, and feeling torn.

My heart hurts for you. You all are in my prayers. I hope that Jack is feeling better soon so you can all be together as a family in one place.

The Phamily Matriarch said...

You can handle it because you are one of the strong people I know! You are amazing as is your entire family.

But at the same time, you don't have to handle it all by yourself. I'm glad you let Mimi and Papa step in and help. Letting others help helps them feel as if they can do something for y'all.

Love y'all oodles!

littlewonders said...

I hope they spoil Jack rotten and hope he feels better soon :) Don't be too hard on yourself, you're a great mom. I love when my kids get one on one time with Nana and Papaw.

Enjoy the game and all your family today! Hugs.


Sarah said...

So happy little Kyle is home. I hate that you guys keep going through all this stuff with his GI tract. Thinkin of you always :)