Boston

So we heard from the surgical team at Childrens....looks like we will be spending Thanksgiving in Boston. We will be heading down early next week and have a day of inpatient testing. The next day the team will perform a gastroscopy and get a real good look at his esophagus and stomach. This help them figure out esophagus issue. They will then try to dilate his esophagus a little bit and bring him back out. Because things are so messed up in there he will have to be admitted to ICU for monitoring. Hopefully the next day (depending on what they find) they will perform the hernia repair in his bowel. They are still somewhat unsure of how to fix it this time, the location of the hernia is in a horrible place and located very close to his aorta. Of course right...

So sadly Kyle will have to be opened up twice, from his belly up to his throat. It's going to be a difficult few months. The plan is to let his body rest from the abdominal surgery and then try to fix the esophagus.

That's all for tonight, I feel very lost tonight. Heavy heart....I'm so tired of this for him. We've seen the bowel surgery before....4 times before. So we know what we are in store for. I'll keep you all posted as we get more details.

K