Feisty

There is a long standing joke between us and some of Kyle's medical team that he is "feisty"....he is very strong willed and has been since birth, we say all the time that this quality in him has carried him thru some of his toughest challenges...today I was once again thankful for Kyle being feisty. Since he came out of surgery on Wednesday night he has been in almost constant pain. He has been telling us for 2 days that the pain was horrible and that he was "sick"....

This afternoon during a bed change I looked down and saw stool coming out of his G tube..the tube connected to his remaining stomach. Major scary red flag, his temp was way up and his pain was unmanageable. The surgeons were by his bed quickly and we were told that he may have a leak somewhere and his stool was leaking from the colon....this is very dangerous and life threatening. He was brought into surgery and it was discovered that the section of bowel where they placed the J tube had collapsed and was obstructed. They had to remove the j tube which is a concern but this was a much better problem then what we thought.

He is now back in ICU and is comfortably sleeping.
My head is so foggy and my heart still hurts....but I am so incredibly grateful that our Kyle is feisty and we still are fighting this fight.

XO
Kate