hurt

I keep saying in my brain day after day, I can't do this....it physically hurts to watch this....my heart is literally aching and my head is pounding....he looks at us with pain and such sadness and we can do nothing. I realize before anyone jumps that we will continue to do this, to fight for him but there are those brief moments where my breathe is gone and I question if I'm strong enough to keep watching this.

Kyle is pretty much the same as yesterday, pain and lungs are still a large issue...still in the ICU....he will have a contrast study done tomorrow to make sure his new anatomy all looks good still. There is a concern that when Kyle is complaining this much there is always a reason. We are becoming very worried about his mental health, he is very sad...no strength....we got him into a wheel chair and went up to the Children's floor to try to get some happiness into him, it didn't work but I'm hoping it was just enough to keep his spirit going. He is missing "his kids" and wants to see them so badly. I know once we get upstairs and they can come in that will help him so much.

I need to keep saying that our Kyle is strongly then any adult I have ever encountered...he continues to amaze us with his bravery and kindness....

XO
Kate