I play head games with myself, I'm sure it's unhealthy in some ways and healthy in others. I work out worse cases scenarios in my brain and then when things don't go that bad I somehow feel a little better about life. It's been one of those days, where I find I'm talking to myself all day in my brain...trying to make sense of things that make no sense to me. We are still at home and will be as long as Kyle stays stable until next week...his team is still trying to figure some things out and while I know they are trying I feel frustrated. Kyle's off a bit and has been the last few days, those subtle changes that we notice that may not be alarming in some kids...but with Kyle it makes us anxious. Makes his dr anxious...big sigh. We are going to start replacing his fluids thru his IV tomorrow...this will keep us home more but increases us messing with our life line the PICC. We got word that Columbus can't take him until March...I'm still trying to process that. I am still living life for today. Enjoying today's small moments...like when Kyle saw Alex get off the bus, he turned and looked at me and said.."there's my girl" So excited to see his sister...makes me melt..just a little.
My girlfriend http://www.miraclemonsterdesigns.blogspot.com/ did this blog and this picture of the boys..she's pretty amazing...and very talented! :)