Not a good day

I knew last night that today's appointments wouldn't be good, Kyle liver enzymes are way elevated again and he lost weight for the 4th week in a row...we have no other choice at this point then to admit him to the hospital and start the Omegaven for his liver. His dr also let us know that it looks like Columbus is still 3 weeks out which scares all of us, we are literally working on borrowed time with the PICC line and they aren't comfortable putting in another central line here. They want Columbus to do it. During this stay we will also place a g / j tube again and hope that we can maybe get some feeds thru the j...hoping...praying....we know what normally happens when we try this but we have to keep trying. He will hopefully be admitted tomorrow but it could be Thursday, it all depends on the schedule down in IR..we are requesting a specific team so it may take an extra day. None of this makes sense to him, he's confused tonight. He's struggling with some anxiety issues....

I am so angry, I can barely stand it. I hate this...he's so tiny right now...I am petrified of another infection...his body is already so compromised.