Where to start.

I don't know where to start, my brain is cloudy and I feel angry. Yesterday we found out that Kyle's cortisol levels in his body were non-existent...normal levels would be around 12-18...he had none that could be detected in his blood. Cortisol is a corticosteroid hormone or glucocorticoid produced by the adrenal cortex, that is part of the adrenal gland. Why his body is no longer producing this we do not know. They caught it because his blood pressures were dropping and they ran a series of tests to help determine why. Thank god they caught he could have died from not having any in his body. They are at this point giving him cortisol and stress steroids to help his body start making more of this cortisol. The problem is we don't know yet why his body stopped making it...the labs were drawn and have to be sent to the Mayo clinic, we won't know for another week. On top of that the twitching has not stopped nor has his belly pain. He will get an EEG tomorrow morning and also an MRI at some point in the next two days to look at his adrenal gland and his brain...

He's exhausted, in pain, and wants to go home. We are no further closer to finding out what is going on with his belly then we were a week ago...

I will update tomorrow when we know more..

xox
K